SE-ATLAS

Mapping of Health Care Providers
for People with Rare Diseases

Zentrum für seltene Herz- und Kreislauferkrankungen der Universitätsmedizin Göttingen

Description of facility

Director / Spokesperson
PD Dr. Frauke Czepluch, Prof. Dr. Claudia Dellas
Information
Care facility for adults and children
Description
Das Zentrum für seltene Herz- und Kreislauferkrankungen Göttingen an der Universitätsmedizin Göttingen (UMG) bietet eine fächerübergreifende Diagnostik und Therapie für seltene Herz- und Kreislauferkrankungen an und dient als Anlaufstelle für betroffene Patient*innen, ihre Angehörigen und die zuweisenden Ärzt*innen. Mithilfe des multidisziplinär arbeitenden, hochqualifizierten Teams ist es möglich, den Patient*innen auf dem neuesten Stand des medizinischen Wissens zu betreuen. Darüber hinaus schafft das Zentrum für seltene Herz- und Kreislauferkrankungen Göttingen den organisatorischen Rahmen für eine verstärkte interdisziplinäre Zusammenarbeit zwischen den beteiligten Kliniken mit anderen lokalen, nationalen und internationalen Einrichtungen.

Consultation hours

nach Vereinbarung.

Care provisions

This facility offers the following
  • Social / legal advice
  • Genetic counselling
  • Clinical studies / research
  • Diagnostic
  • Therapy
  • Contact with support groups
    Herzkind e.V. mit der regionalen Kontaktgruppe GEKKO; JEMAH e.V.; Bundesverband Williams-Beuren-Syndrom e.V.; Fördergemeinschaft Deutsche Kinderherzzentren e.V.; Marfan Hilfe e.V.; ARVC-Selbsthilfe

Contact

Sekretariat
0551 3968593
herzzentrum.seltene-herzkrankheiten@med.uni-goettingen.de
Website https://zseg.umg.eu/unsere-spezialzentren/zentrum-fuer-seltene-herz-und-kreislauferkrankungen/

Address

Robert-Koch-Straße 42a
37075 Göttingen

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Languages

Germany.png Deutsch
United_Kingdom.png Englisch

Certificates 1

Preview of the assigned diseases 15

Congenital patent ductus arteriosus aneurysm Dextrocardia Encircling double aortic arch Abnormal origin or aberrant course of coronary artery Kommerell diverticulum Persistent fifth aortic arch Congenital anomaly of the inferior vena cava Congenital anomaly of superior vena cava Renal-hepatic-pancreatic dysplasia Congenital anomaly of the coronary sinus Congenitally uncorrected transposition of the great arteries with cardiac malformation Anomaly of the mitral subvalvular apparatus Complete atrioventricular septal defect Idiopathic pulmonary arterial hypertension Isolated right ventricular hypoplasia Scimitar syndrome Heterotaxia Heritable pulmonary arterial hypertension Pulmonary valve agenesis Congenitally uncorrected transposition of the great arteries Double outlet right ventricle Double outlet right ventricle with subaortic or doubly committed ventricular septal defect with pulmonary stenosis Double outlet left ventricle Congenitally uncorrected transposition of the great arteries with coarctation Double outlet right ventricle with subpulmonary ventricular septal defect Double outlet right ventricle with subaortic ventricular septal defect Double outlet right ventricle with doubly committed ventricular septal defect Double outlet right ventricle with non-committed subpulmonary ventricular septal defect Pulmonary artery coming from patent ductus arteriosus Discrete fixed membranous subaortic stenosis Abnormal origin of right or left pulmonary artery from the aorta Tunnel subaortic stenosis Discrete fibromuscular subaortic stenosis Congenital anomaly of the tricuspid valve chordae Valvular pulmonary stenosis Congenital mitral stenosis Congenital supravalvular mitral ring Abnormal origin of the pulmonary artery Hypoplasia of the mitral valve annulus Accessory mitral valve tissue Congenital pulmonary veins atresia or stenosis Congenital unguarded mitral orifice Congenital pulmonary valvar stenosis Shone complex Subpulmonary stenosis Mitral valve agenesis Supravalvular pulmonary stenosis Straddling and/or overriding mitral valve Supravalvular aortic stenosis Univentricular cardiopathy Complete atrioventricular septal defect with ventricular hypoplasia Complete atrioventricular canal-left heart obstruction syndrome Univentricular heart with single atrio-ventricular valve Aneurysm or dilatation of ascending aorta Complete atrioventricular septal defect-tetralogy of Fallot Aorto-left ventricular tunnel Premature closure of the arterial duct Aorto-right ventricular tunnel Congenital coronary artery aneurysm Cervical aortic arch Right aortic arch Pulmonary artery hypoplasia Dysphagia lusoria Coronary artery intramyocardial course Coronary ostial stenosis or atresia Intramural coronary arterial course Congenital pulmonary venous return anomaly Malposition of a coronary ostium Congenital systemic veins anomaly Fixed subaortic stenosis Interventricular septum aneurysm Congenital aortic valve stenosis Congenital Gerbode defect Cor triatriatum sinister Cor triatriatum dexter Juxtaposition of the atrial appendages Atrial septal defect, ostium secundum type Aneurysm of sinus of Valsalva Congenital pericardium anomaly Atrial septal defect, sinus venosus type Atrial septal defect, coronary sinus type Atrial septal aneurysm Atrial septal defect, ostium primum type Persistent left superior vena cava connecting through coronary sinus to left-sided atrium Agenesis of the superior vena cava Coronary sinus stenosis Coronary sinus atresia Azygos continuation of the inferior vena cava Congenital total pulmonary venous return anomaly Congenital partial pulmonary venous return anomaly Congenital complete agenesis of pericardium Truncus arteriosus Coronary artery congenital malformation Congenital partial agenesis of pericardium Congenital valvular dysplasia Aorto-ventricular tunnel Pulmonary capillary hemangiomatosis Situs ambiguus Pulmonary arterial hypertension associated with congenital heart disease Transposition of the great arteries Aortic arch defects Levocardia Congenitally corrected transposition of the great arteries Isolated congenitally uncorrected transposition of the great arteries Conotruncal heart malformations Congenital mitral malformation Cardiac diverticulum Transposition of the great arteries and conotruncal cardiac anomaly Heart position anomaly Rare congenital non-syndromic heart malformation Pulmonary artery or pulmonary branch anomaly Aortic malformation Congenital tricuspid malformation Atrioventricular valve anomaly Hypoplastic right heart syndrome Ascending aorta anomaly Congenital anomaly of the great arteries Rare atrial defect and interatrial communication Congenital pulmonary veins anomaly Congenital anomaly of the great veins Aorta coarctation Criss-cross heart Mitral atresia Triatrial heart Pulmonary atresia with ventricular septal defect Univentricular heart Pulmonary atresia-intact ventricular septum syndrome Tricuspid atresia Eisenmenger syndrome Interatrial communication Tetralogy of Fallot Arterial duct anomaly Situs inversus totalis Hypoplastic left heart syndrome Congenital aortic valve atresia Familial mitral valve prolapse Anomaly of the tricuspid subvalvular apparatus Congenital mitral valve insufficiency and/or stenosis Coronary arterial fistula Aortic arch interruption Ehlers-Danlos syndrome Mesocardia Congenital aortic valve insufficiency Tricuspid valve agenesis Congenital tricuspid stenosis Tricuspid valve prolapse Accessory tricuspid valve tissue Cleft mitral valve Congenital aortopulmonary window
9.94067600673108751.551801600000005Zentrum für seltene Herz- und Kreislauferkrankungen der Universitätsmedizin Göttingen
Last updated: 27.11.2024