Welcome to the pages of SE-ATLAS Mapping of Health Care Providers for People with Rare Diseases
our aim is to provide an overview of health care providers and support groups related to rare diseases in Germany.
Healthcare for Rare Diseases in Germany
Specialised health care providers are mostly found at university hospitals and hospitals in larger German cities. At the 37 Centres for Rare Diseases, knowledge is bundled and there is a contact point for people with rare diseases.
You can find an overview of the Centers for Rare Diseases here.
List of Centers for Rare Diseases in Germany
After selecting a facility, you will receive a detailed description of the facility with disease focal points and contact information.
Information page of a Center for Rare Diseases with contact information and Disease focal points
If you select a focus, you will receive further information on the specific disease focus.
Information page of a focal point
At SE-ATLAS, you can also search for health care providers and support groups specific to a rare disease. In the search field, diseases can be searched for in German, English or French.
Search field for entering the disease
Further links, contact points, help for people from Ukraine can also be found on the following pages:
Google Translate :
On our website, you have the option of using the information offered in another language. For this purpose, we use Google Translate (operated by Google Inc., 1600 Amphitheatre Parkway, Mountain View, CA 94043, USA). For data protection reasons, Google Translate is deactivated by default. Only if you select a language other than German will Google Translate be activated. In addition to your IP address, the URL of the visited page is also transmitted to Google. With Google Translate, the translation is displayed directly on the respective page.
Information on the purpose and scope of the data collection as well as on the processing of the data by Google can be found in the data protection information below: