Versorgungsatlas für Menschen mit seltenen Erkrankungen

Welcome to the pages of SE-ATLAS Mapping of Health Care Providers for People with Rare Diseases

Dear visitor,
our aim is to provide an overview of health care providers and support groups related to rare diseases in Germany.

Healthcare for Rare Diseases in Germany

Specialised health care providers are mostly found at university hospitals and hospitals in larger German cities. At the 37 Centres for Rare Diseases, knowledge is bundled and there is a contact point for people with rare diseases.
You can find an overview of the Centers for Rare Diseases here.

List of Centers for Rare Diseases in Germany

After selecting a facility, you will receive a detailed description of the facility with disease focal points and contact information.

Information page of a Center for Rare Diseases with contact information and Disease focal points

If you select a focus, you will receive further information on the specific disease focus.

Information page of a focal point

At SE-ATLAS, you can also search for health care providers and support groups specific to a rare disease. In the search field, diseases can be searched for in German, English or French.

Search field for entering the disease

Further information

Further links, contact points, help for people from Ukraine can also be found on the following pages:

Please note that the texts on have been machine translated. The translation was done fully automatically without human intervention, therefore the quality and accuracy of the translation may vary. We accept no liability for errors and do not guarantee accuracy.

Google Translate :
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Information on the purpose and scope of the data collection as well as on the processing of the data by Google can be found in the data protection information below: