SE-ATLAS

Mapping of Health Care Providers
for People with Rare Diseases

Centre for Rare Lung Diseases at Heidelberg University Hospital

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Universitätsklinikum Heidelberg
Centre for Rare Diseases Heidelberg

Description of facility

Director / Spokesperson
Professor Dr. med. Felix Herth, Dr. med. Markus Polke
Information
Care facility for adults
Description
The Centre for Rare Lung Diseases is located in the Department of Pneumology and Respiratory Medicine of the Thorax Clinic of Heidelberg University Hospital. Every year, around 19,000 cases of lung diseases are treated at the Thoraxklinik Heidelberg, both as outpatients and as partial and full inpatients, of which approx. 20% are rare lung diseases. Patients under the age of 18 are cared for at the Centre for Paediatrics and Adolescent Medicine.
As a partner in the German Centre for Lung Research (DZL), the Thorax Hospital is integrated into the inter-site collaboration in the field of basic sciences and clinical research. The Thorax Foundation Heidelberg, founded in 2015, specifically supports projects in science, research and patient care and prevention, especially in relation to diseases of the thoracic organs.

If you are a patient or relative interested in a diagnosis, therapy or second opinion at the clinic, please contact the outpatient clinic or ask your doctor.

Translated with www.DeepL.com/Translator (free version)

Consultation hours

nach Vereinbarung.

Care provisions

This facility offers the following
  • Participation in registries
  • Genetic counselling
  • Clinical studies / research
    The aim of patient-oriented research is to continuously improve the diagnosis and therapy of rare lung diseases. There is close cooperation with research groups within the university hospital as well as external institutions. The clinic conducts numerous scientific projects and clinical studies. Focal points are:
    All forms of interstitial lung diseases, cystic fibrosis, pulmonary hypertension, complex endoscopic interventions in lung diseases, alpha-1 antitrypsin deficiency, obstructive airway diseases (especially severe asthma), smoking cessation.
  • Diagnostic
  • Therapy
  • Contact person for patients with an unclear diagnosis
    Coordinator of the Centre, Dr. Okun (06221-564503, seltene.erkrankungen@med.uni-heidelberg.de); office hours by telephone: Mon - Fri 9:00 - 11:00, Tue and Thu 14:00 - 16:00.
  • Contact with support groups
    Lungenfibrose e.V. (http://www.lungenfibrose.de/), Pulmonale Hypertonie e.V. (https://www.phev.de/)

Contact

ILD-Nurse
06221 3968219
marianne.seiter@med.uni-heidelberg.de
Website https://www.klinikum.uni-heidelberg.de/interdisziplinaere-zentren/zentrum-fuer-seltene-erkrankungen/fachzentren

Address

Röntgenstraße 1
69126 Heidelberg

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Languages

Germany.png Deutsch
United_Kingdom.png Englisch

European Reference Network 1

ERN LUNG

Preview of the assigned diseases 8

Alpha-1-antitrypsin deficiency
Idiopathic pulmonary fibrosis
Lymphangioleiomyomatosis
Non-specific interstitial pneumonia
Primary ciliary dyskinesia
Pulmonary arterial hypertension
Rare allergic respiratory disease
Sarcoidosis

Provided care options 4

# Contact person
1
Ambulanz für Lungenhochdruck - Pulmonale Hypertonie
Prof. Dr. med. Ekkehard Grünig

06221 3961288
Email
Website
Sprechzeiten nach Vereinbarung.

2
Ambulanz für Sarkoidose
Dr. med. Markus Polke, Prof. Dr. med. Hanns-Martin Lorenz

06221 3968000
Email
Website
Sprechzeiten nach Vereinbarung.

3
Ambulanz für Interstitielle Lungenerkrankungen
Sekretariat

06221 3968000
Email
Website
Sprechzeiten nach Vereinbarung.

4
Ambulanz für Alpha-1-Antitrypsin-Mangel
PD Dr. med. Franziska Trudzinski

06221 3968000
Email
Website
Sprechzeiten nach Vereinbarung.

8.6901636623112249.37786385Centre for Rare Lung Diseases at Heidelberg University Hospital
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Last updated: 11.03.2024