SDS Deutschland e.V. Shwachman Diamond Syndrom Deutschland
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Description of patient organisation
• supports and helps affected persons, family and friends
• collect donations for research and the SDSR-EU (Shwachman Diamond Syndrome Registry Europe)
• provides information work
• connects professionals, doctors and sufferers worldwide
• collect donations for research and the SDSR-EU (Shwachman Diamond Syndrome Registry Europe)
• provides information work
• connects professionals, doctors and sufferers worldwide
Care provisions
This support group organisation offers the following
- Participation in registries
- Social / legal advice
- Internal forum
- Regular meetings
Preview of the represented diseases 1
9.2064974879687548.62290335SDS Deutschland e.V. Shwachman Diamond Syndrom Deutschland
Last updated:
31.10.2023