SE-ATLAS

Mapping of Health Care Providers
for People with Rare Diseases

Kyphoscoliotic Ehlers-Danlos syndrome due to lysyl hydroxylase 1 deficiency

Further information on this disease (ORPHANET)

Care facilities 3

Supportgroups 2

# Address
1
Achse Logo
Bundesverband Ehlers-Danlos-Selbsthilfe e.V.  (ca. KM entfernt)

Post Office Box 110202
33662 Bielefeld

05205 728953
Email
Website

2
Achse Logo
Deutsche Ehlers-Danlos-Initiative e.V.  (ca. KM entfernt)

Post Office Box 1619
90706 Fürth

0911 97923810
Email
Website